Emner > HSCT

Per til Artemis i Indien for HSCT.

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per west:
Nu er det så ved at være alvor, for den 14.10 rejser jeg til Indien, for at få 0-stillet mit immunforsvar hvilket gøres ved at indsprøjte kanin-dræberceller, so så vil angribe mine for aggressive T-celler, og forhåbentlig resette mit immunforsvar.

Kunne det lade sig gøre, at få udviklingen i sclerosen sat på stop, og måske oven i købet få gang i lidt reperationsarbejde nederst i ryggen, vil meget være opnået.

Behandlingen er planlagt til ca. 26 dage, og så vil der være en efterbehandling hjemme, hvor jeg skal leve lidt tilbagetrukket, og afvente til min immunsystem er oppe på fuld styrke.

Først skal man igennem en kontrol, hvor der bliver udført en grundig helbredsundersøgelse, for at sikre, at patientern (mig) kan klare, at få indsprøjtet en coctail for henholdsvis at høste stamceller som så bliver renset, dræbe 90 % af ens immunforsvar, og sætte de høstede, nu rensede stamceller tilbage i kredsløbet. Ikke helt i den orden, men jeg vil prøve om jeg kan gi melding her, i hvilken rækkefølge behandlingen foregår.

HD4ever:
Hej Per
Håber det bedste for dig   :) :)

per west:
Hi there. I'm arrived Saturday to Delhi, and started out a little slowly, by booking in on a Hotel: Country Inn & Suites by Carlston.
God a nice room, same to my voluntary assistant, and wee was welcomed by hospitalcab and interpreter, already present at the airport, and he followed me and my assistant, Per Juel, to the Hotel.
Next day until Monday, was relaxation, and then Monday was the first day where we where meant to visit Artemis Hospital.
I started the day to slide in the bath, where the flor is made of marmor, which is absolutely unfit and dangerous for people, such as my self, with balance.problems, so I found my self with a nasty bilge in my forehead and two knees, larger in size than before I went to bath.

So now newcomers is warned, when or if they want to join the party!

Next step for me, as a pioneer-patient, and Per Juel, was to, by Artemis-taxi, to drive to the hospital.

At the arrival, the first step was to consult Dr. Aniruddha? - Consultant Haemato- Oncology, who wanted to assess, if my general health would be able to stand for HSCT-treatment, and he looked over some papers I have brought, that stated that I didn't suffers from Hepatitis, HIV, Syphilis or other nasty diseases.

The doctor told me, that they at the moment had 4 patients, being ending Autoimmunity treatment, and they had not had any unfortunate incidences. Dr. Aniruddha is a very cosy fellow, and he assured me, that they was very skilled in this kind of treatment, and he looked forward to start with mine.

Next step was Dr. Sumit Singh, a bit dry neurologist, the way most neurologists are, who tested my reflexes, the way neurologists always do, by hammering on my bath-wounded kneecaps, and testing my walking-ability, which wasn't easy, in the small office, the consultation was located.

After this I met with a very sweet Head Dietician, where I told, what diners was my normal habits of eating, which is mostly organic meat and vegetables. She also suggested some more Indian dishes, and we met on a compromises.
After all, I am some kind of a tourist.

Then 45 minutes of MR-scan was carried out, and then...

Then :-) we visited Artemis cafeteria, and got some rise and corn-salads and some very tasty, but a little strong spiced sandwiches, but unfortunately the time for this, was very short, so I spilled coffee on my shirt when I, placed in a wheelchair tried to finish of the meal.

I'm a little bit uncertain, if the wheelchair-driver had a license for this kind of vehicles.

After this, time for Pulmonary Function Test, where they ultra-scanned my hearth, and judged if it would be able to pump the needed oxygen to my kidneys and lungs, for the need of getting rid of all the poison I would be forced to evaporate out, when the chemo was carried out.

It looked fine, and the valves in my hearth looked like they was some kind of, state of the art, according to the radiologist.

Then the end of first day at Artemis, and the first bill was presented, for the tests carried out. App. 700 US $, if I was judged unfit to continue the treatment, which I luckily didn't was told, yet. :-)

I'm the only one on it seems, with MS? ;-)

Pity. It might have helped to start up some MS-stemcell-conversation?

Lisa.T:
Pøj pøj, Per, held og lykke!

Er det Lis Wiberg, der er der???? Jeg har prøvet at få fat i hende flere gange, ville godt høre hvordan hun har det.

per west:
Jeg har konsulteret hende herhjemme, og er blevet hjulpet godt, og efter hvad hun siger er behandlingen efter samme HSCT-koncept som Dr. Burt i Chicago, desværre lidt forkortet. Selv ville jeg gerne have haft lidt længere tids efterbehandling, mht. motion og genoptræning.

Min egentlige inspiration er den norske læge, Sigbjørn Rogne, hvis artikler om emnet, inspirerede mig meget.

Efterbehandlingen her i Indien, fokuserer primært på reetablering af et nyt immunforsvar.

Motorik og balance og styrketræning må jeg selv forsøge mig frem med, når behandlingen slutter om en lille måneds tid, hvis ellers jeg har bestået helbredstesten? Dog er der intet der forhindrer en i at sætte sig og rejse sig op 200 gange, sagde Dr. Aniruddha, som skal stå for høstning og formering af stamcellerne, hvilket vist ikke blir særligt sjovt.  :(

Jeg skal så også holde mig ret isoleret fra snotnæsede børn og andre smittekilder, i en tre måneders tid, og måske have reetableret de mest nødvendige vaccinationer.

Jeg følges af en hjælper, også en Per, der som mig, er førtidspensionist, og som hjælper mig med at rejse og overkomme hvad der kan dukke op, af bivirkninger. Heldigvis er han mere selvhjulpen end mig, så han supplerer mig meget godt på rejsen. Den blinde hjælper den døve, eller også er det omvendt.

Hvad har man ellers, også nye venner til?


Hvis ikke jeg godkendes til behandling, så er det hjemrejse i løbet af de næste par dage, et par tusinde kroner fattigere, men hovedparten af pengene vil så blive returneret.

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